Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’. We ask that you first read the participant information sheet before reaching your decision on participation. Participant Information Sheet.

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

  1. For individuals with TMAU over the age of 18. (
  1. For a parent or guardian of a child with TMAU.
  1. The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire is open from 09:00 am (GMT) Friday 18th December 2020 to 11:59 pm (GMT) Sunday 31st January 2021.